Welcome to

Nurturing Neurons

The mission of Nurturing Neurons is to support the neuromuscular program at Seattle Children’s Hospital and raise community awareness about pediatric neuromuscular disorders.

Funding Medical Care

Neuromuscular conditions are often chronic and progressive requiring extensive patient care.

Education and Awareness

Striving to increase awareness about pediatric neuromuscular conditions.

Patient Support

Given the extensive impact of neuromuscular conditions, patient benefit from support groups and wellness programs.

Research

Supporting research allows us to unravel the mysteries behind these rare conditions.

Charcot-Marie-Tooth Disease

CMT is a group of genetic conditions that affect peripheral nerves.

Duchenne Muscular Dystrophy

Is a genetic condition that weakens muscles over times.

Friedreich's Ataxia

A genetic disease that damages the spinal cord, the nerves and the brain.

The Impact Of

Neuromuscular Conditions

Pediatric neuromuscular disorders encompass multiple devastating diseases which affect the nervous system to cause muscle weakness and pain. Although these conditions may individually be rare, as a group, the spectrum of pediatric neuromuscular conditions comprise a significant disease burden. These life-altering disorders are often chronic and progressive; hence, many patients require expensive, long-term support. While research on genetic therapies and new medications is ongoing, there is currently no cure for neuromuscular disorders.

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