Nurturing Neurons - Empowering Patients, Inspiring Communities

Founded in 2021

hello@nurturingneurons.org

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Nurturing Neurons - Empowering Patients, Inspiring Communities

Advocate, Engage, Inspire

NURTURING NEURONS

for Rare Neurological Diseases

Artist Credit: Paige, Winner of NeuroART 2021

Our Mission

Supporting Pediatric Patients with Neuromuscular Conditions

About Us

We advocate on behalf of pediatric patients affected by neurological conditions and contribute to the advancement of the Neuromuscular Program at Seattle Children’s Hospital, along with its affiliated programs. Our work seeks to enhance global awareness of the substantial burden and far-reaching impact that neurological diseases impose on children and their families. We are committed to improving the quality of life for these patients through the sponsorship of innovative treatments, the provision of critical resources, and the cultivation of a compassionate, supportive community. Guided by a patient-first philosophy, our approach emphasizes a comprehensive and holistic model of support.

  • COMPASSION

    Helping to provide compassionate, holistic care that supports medical needs as well as nurturing emotional well being.

  • CREATIVITY

    Innovative events inspire and engage communities in new and meaningful ways, adding creativity to critical work.

  • EDUCATION

    Educating youth about neurological conditions and neuroscience fosters empathy, reduces stigma, and inspires curiosity about the brain.

  • FUNDRAISING

    Fundraising to support the Neuromuscular division of Seattle Children’s advances specialized care, research, and innovative treatments.

  • AWARENESS

    Raising awareness to drive understanding, accelerate diagnosis, attract research funding, and build a compassionate community.

  • COLLABORATION

    Collaboration brings together diverse strengths and perspectives, drives more effective solutions, and builds a stronger, more connected community.

  • GLOBAL REACH

    Expanding our global reach to share knowledge, connect with broader networks, and build a stronger, more inclusive community.

  • COMPASSION

    Helping to provide compassionate, holistic care that supports medical needs as well as nurturing emotional well being.

  • CREATIVITY

    Innovative events inspire and engage communities in new and meaningful ways, adding creativity to critical work.

  • EDUCATION

    Educating youth about neurological conditions and neuroscience fosters empathy, reduces stigma, and inspires curiosity about the brain.

  • FUNDRAISING

    Fundraising to support the Neuromuscular division of Seattle Children’s advances specialized care, research, and innovative treatments.

  • AWARENESS

    Raising awareness to drive understanding, accelerate diagnosis, attract research funding, and build a compassionate community.

  • COLLABORATION

    Collaboration brings together diverse strengths and perspectives, drives more effective solutions, and builds a stronger, more connected community.

  • GLOBAL REACH

    Expanding our global reach to share knowledge, connect with broader networks, and build a stronger, more inclusive community.

  • COMPASSION

    Helping to provide compassionate, holistic care that supports medical needs as well as nurturing emotional well being.

  • CREATIVITY

    Innovative events inspire and engage communities in new and meaningful ways, adding creativity to critical work.

  • EDUCATION

    Educating youth about neurological conditions and neuroscience fosters empathy, reduces stigma, and inspires curiosity about the brain.

  • FUNDRAISING

    Fundraising to support the Neuromuscular division of Seattle Children’s advances specialized care, research, and innovative treatments.

  • AWARENESS

    Raising awareness to drive understanding, accelerate diagnosis, attract research funding, and build a compassionate community.

  • COLLABORATION

    Collaboration brings together diverse strengths and perspectives, drives more effective solutions, and builds a stronger, more connected community.

  • GLOBAL REACH

    Expanding our global reach to share knowledge, connect with broader networks, and build a stronger, more inclusive community.

Be A Part Of The Solution

Join Our Team or Volunteer Once. Service Comes in All Sizes.
Find Your Reason to Help!

Uncover the joy that lives in the simple act of helping children and families along a difficult journey that most of us cannot even imagine. In giving your time, your heart finds something it didn’t even know was missing.

Get Involved

  • [01]

    Be a Part of Research, Advocacy, Education

    Volunteering not only allows you to give back, but also offers hands-on learning experiences that build new skills, perspectives, and personal growth.

  • [02]

    Find Community

    Rare disease advocacy is about standing with those who often feel invisible and turning isolation into community and uncertainty into progress. Every step forward is a promise that rare is not forgotten.

  • [03]

    Fill your Heart

    For children with neuromuscular diseases, quality of life depends on more than treatment. Supporting the emotional, physical, and social well-being of patients living with neuromuscular diseases translates to building a care environment where healing means more than medicine.

  • [04]

    We Need You

    Over 50 types of pediatric neuromuscular diseases affect thousands of children across the U.S. By volunteering, you help accelerate support, research, and visibility for families navigating conditions so rare they often go years without a diagnosis.

Be A Part Of The Solution

Join Our Team or Volunteer Once. Service Comes in All Sizes.
Find Your Reason to Help!

Uncover the joy that lives in the simple act of helping children and families along a difficult journey that most of us cannot even imagine. In giving your time, your heart finds something it didn’t even know was missing.

Get Involved

  • [01]

    Be a Part of Research, Advocacy, Education

    Volunteering not only allows you to give back, but also offers hands-on learning experiences that build new skills, perspectives, and personal growth.

  • [02]

    Find Community

    Rare disease advocacy is about standing with those who often feel invisible and turning isolation into community and uncertainty into progress. Every step forward is a promise that rare is not forgotten.

  • [03]

    Fill your Heart

    For children with neuromuscular diseases, quality of life depends on more than treatment. Supporting the emotional, physical, and social well-being of patients living with neuromuscular diseases translates to building a care environment where healing means more than medicine.

  • [04]

    We Need You

    Over 50 types of pediatric neuromuscular diseases affect thousands of children across the U.S. By volunteering, you help accelerate support, research, and visibility for families navigating conditions so rare they often go years without a diagnosis.

Be A Part Of The Solution

Join Our Team or Volunteer Once. Service Comes in All Sizes.
Find Your Reason to Help!

Uncover the joy that lives in the simple act of helping children and families along a difficult journey that most of us cannot even imagine. In giving your time, your heart finds something it didn’t even know was missing.

Get Involved

  • [01]

    Be a Part of Research, Advocacy, Education

    Volunteering not only allows you to give back, but also offers hands-on learning experiences that build new skills, perspectives, and personal growth.

  • [02]

    Find Community

    Rare disease advocacy is about standing with those who often feel invisible and turning isolation into community and uncertainty into progress. Every step forward is a promise that rare is not forgotten.

  • [03]

    Fill your Heart

    For children with neuromuscular diseases, quality of life depends on more than treatment. Supporting the emotional, physical, and social well-being of patients living with neuromuscular diseases translates to building a care environment where healing means more than medicine.

  • [04]

    We Need You

    Over 50 types of pediatric neuromuscular diseases affect thousands of children across the U.S. By volunteering, you help accelerate support, research, and visibility for families navigating conditions so rare they often go years without a diagnosis.

People that Inspire

The Stories Behind Our Volunteers

Journeys that shape us. Stories that inspire.

Learn More About Our Volunteers

Current Programs

Community Building Events That Empower Patients and Inspire Action

Programs that create meaningful opportunities for people to engage, connect, and collaborate. Get involved and turn shared interests and talents into positive action.

More About Current and Upcoming Programs & Events

01

Comprehensive Patient Assessment - Webinar

Physical therapist and Yoga Therapist, Husena Dalal discusses the role of comprehsive patietn assessment in developing a physical therapy plan for patietns with neurological conditions.

02

Winter Panda Express Fundraiser - January 16

03

Holiday Books & Blanket Drive - December 3 - 31

04

NeuroArt 2026

05

Winter Wish List - February 2026

Current Programs

Community Building Events That Empower Patients and Inspire Action

Programs that create meaningful opportunities for people to engage, connect, and collaborate. Get involved and turn shared interests and talents into positive action.

More About Current and Upcoming Programs & Events

01

Comprehensive Patient Assessment - Webinar

Physical therapist and Yoga Therapist, Husena Dalal discusses the role of comprehsive patietn assessment in developing a physical therapy plan for patietns with neurological conditions.

02

Winter Panda Express Fundraiser - January 16

03

Holiday Books & Blanket Drive - December 3 - 31

04

NeuroArt 2026

05

Winter Wish List - February 2026

Current Programs

Community Building Events That Empower Patients and Inspire Action

Programs that create meaningful opportunities for people to engage, connect, and collaborate. Get involved and turn shared interests and talents into positive action.

More About Current and Upcoming Programs & Events

01

Comprehensive Patient Assessment - Webinar

Physical therapist and Yoga Therapist, Husena Dalal discusses the role of comprehsive patietn assessment in developing a physical therapy plan for patietns with neurological conditions.

02

Winter Panda Express Fundraiser - January 16

03

Holiday Books & Blanket Drive - December 3 - 31

04

NeuroArt 2026

05

Winter Wish List - February 2026

Programs, Events, Updates

Programs & Events

More Programs & Events

Fundraiser

Jan 16, 2026

Winter Panda Express Fundraiser

Read More

Education

Jan 15, 2026

Holistic Patient Assessment in Physical Therapy

Read More

Fundraiser

Dec 5, 2025

Partnering with Panda Express - Holiday Fundraiser

Read More

Education

Dec 3, 2025

Books & Blankets Holiday Drive for Pediatric Patients

Read More

Fundraiser

Oct 31, 2025

Partnering with Panda Express - Halloween Fundraiser

Read More

Fundraiser

Sep 27, 2025

Boston Zero-K: Race to End CMT

Read More

Additional Resources

Get Involved

Email us to learn how you can join our team.

Contact Us Now

Stay Informed!

Address

P.O. Box 2985, Issaquah, WA 98027

Email

hello@nurturingneurons.org

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