Nurturing Neurons is an approved 501(c)3 nonprofit organization.
This website was designed and created by Anushka Noori and Anshul Noori
The mission of Nurturing Neurons is to support the neuromuscular program at Seattle Children’s Hospital and raise community awareness about pediatric neuromuscular disorders.
Neuromuscular conditions are often chronic and progressive requiring extensive patient care.
Striving to increase awareness about pediatric neuromuscular conditions.
Given the extensive impact of neuromuscular conditions, patient benefit from support groups and wellness programs.
Supporting research allows us to unravel the mysteries behind these rare conditions.
CMT is a group of genetic conditions that affect peripheral nerves.
Is a genetic condition that weakens muscles over times.
A genetic disease that damages the spinal cord, the nerves and the brain.
The Impact Of
Pediatric neuromuscular disorders encompass multiple devastating diseases which affect the nervous system to cause muscle weakness and pain. Although these conditions may individually be rare, as a group, the spectrum of pediatric neuromuscular conditions comprise a significant disease burden. These life-altering disorders are often chronic and progressive; hence, many patients require expensive, long-term support. While research on genetic therapies and new medications is ongoing, there is currently no cure for neuromuscular disorders.